Privacy Policy

Last updated: 30 August 2025

Cholangiocarcinoma Foundation Australia (“we”, “our”, “us”) respects your privacy and is committed to protecting your personal information. This Privacy Policy explains how we collect, use, disclose and store your personal information in line with the Privacy Act 1988 (Cth) (Australia), the Privacy Act 2020 (New Zealand), and other applicable laws.

1. Information We Collect

We may collect the following types of personal information when you engage with us, including through the Golden Pass Project or other Foundation activities:

  • Name, email address, phone number, and postal details (suburb/state).

  • Health-related information that you voluntarily provide in your entry, application, or communication with us (e.g., medical history or treatment eligibility).

  • Any information you share with us through forms, surveys, events, or direct communications.

2. How We Use Your Information

We use your information to:

  • Administer competitions, initiatives, and programs (such as the Golden Pass Project).

  • Contact you about your entry, application, or participation.

  • Verify eligibility and coordinate with judging panels or treating clinicians (where appropriate).

  • Share anonymised stories or insights to raise awareness and improve patient support, only with your consent.

  • Comply with our legal and reporting obligations.

We will not sell, rent, or trade your personal information.

3. Disclosure of Information

We may share your personal information with:

  • Independent judging panels and the benefactor for the purposes of competition assessment.

  • Treating clinicians or medical providers, where necessary for confirming treatment eligibility.

  • Service providers engaged by us to support our operations (e.g., IT, email platforms).

  • Regulators or authorities, if required by law.

Any sharing will be done securely and only to the extent necessary.

4. Storage and Security

We take reasonable steps to protect your personal information from misuse, loss, unauthorised access, modification or disclosure. Information may be stored electronically in Australia or New Zealand with secure, access-controlled providers.

5. Access and Correction

You have the right to request access to the personal information we hold about you, and to request corrections if you believe it is inaccurate or incomplete. Please contact us using the details below.

6. Retention of Information

We keep personal information only as long as necessary for the purposes for which it was collected, or as required by law. After this time, we securely delete or anonymise it.

7. Overseas Disclosure

We generally do not disclose personal information outside Australia or New Zealand. If we ever need to, we will ensure appropriate safeguards are in place.

8. Your Consent

By providing your personal information to us (including sensitive health information), you consent to its collection, use, and disclosure in line with this Privacy Policy.

9. Changes to This Policy

We may update this Privacy Policy from time to time. The latest version will always be available on our website.

10. Contact Us

If you have any questions, concerns, or complaints about how we handle your personal information, please contact us at:

Cholangiocarcinoma Foundation Australia
admin@cholangio.org
Level 9, Unit 9
10 Burnside Road
Ormeau QLD 4208

If you are not satisfied with our response, you may contact the Office of the Australian Information Commissioner (OAIC) or the Office of the Privacy Commissioner (NZ).