Testimonial

James Hastings (NED)

Thanks for the Patient Navigator Journal

Hope you guys made it home and sound, just read the patient journal cover to cover, (on my flight to UCL for next round of Nivo) it’s incredible,.the detail, the path it forges, the ideas and inspiration. Truly amazing and exactly what is needed to navigate CCA, Brilliant James Hastings – Ireland

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Projects you are supporting

Optimal Patient Response (OPR)

From Passenger To Co-Pilot: An Initiative and a carefully choreographed process that enhances healthcare by transforming the standard-of-care into a more comprehensive ‘standard-of-response’ process. At its core are printed Patient Navigator Journals and supporting digital web-app suite, all designed to better equip and empower the patients capacity to effectively respond and survive their diagnosis. A clear, step-by-step process supported by CCF peer-trained Navigators, Coaches, Hospital Coordinators, and a constructive peer-to-peer community, replacing chaos with calm, and overwhelm with direction.

Light Australia Green

Galvanising Collaboration: The Light Australia Green Initiative is a comprehensive annual campaign focused on raising awareness and driving engagement in bile health and cancer response. Through targeted events, such as hospital-hosted symposiums, landmark illuminations on World Cholangiocarcinoma Day, and an annual conference, the initiative unites key stakeholders to promote collaboration, education and progress in managing bile-related cancers.

BILEflow: Bile Health

BILEflow Stands on its own as a research-driven initiative focused on understanding bile composition and health. Aimed at identifying chronic precancerous conditions, thus providing preventive measures for at risk /family and patient monitoring.

BILElink For Patients

Support our CCA-specific BILElink For Patients:  A patient-led, AI-assisted central intelligence platform that matches patient diagnoses with patient-endorsed medical professionals, remote 2nd opinions, remote collaborations, and clinical trials by mutation type.