FUND THE SOLUTION

We don't build awareness of the problem. We build the solution.

We saw what patients were missing. So we built it.

Claire and Steve Holmes funded the beginning themselves. Today, that work helps patients understand earlier, respond sooner and keep options open while they still exist.

We built it. We funded it. Now you can help us scale it.

See what your funding builds

Fund the work.

Your funding helps us build, improve and scale the systems that help patients act earlier and keep options open.

Cure. Extend Survival. Prevent.

The cure is in the cause.

Donations of $2 or more are tax-deductible in Australia.

Prefer to contribute directly? Contact claire@cholangio.org

Sport Events

Find your event.

Already planning to run or swim? Choose your event and turn it into support for cholangiocarcinoma patients.

Running Events 29

2026

Transurban Bridge to Brisbane presented by Brooks Ocean Grove Running Festival Run La Trobe fisiocrem GC50 Run Festival Bondi to Manly Ultra Frankston Running Festival NIKE Melbourne Marathon Festival Geelong Running Festival City-Bay Fun Run TCS Sydney Marathon presented by ASICS

2027

Run Melbourne Cairns Marathon Festival Sunset Series Run The Rock TCS Sydney Marathon presented by ASICS Brisbane Marathon Festival Hervey Bay Half Marathon Festival Hobart Run The Bridge Port Fairy Marathon Portsea Twilight Great Ocean Road Running Festival The Canberra Times Marathon Festival Barwon Heads Running Festival Rosebud Running Festival Mornington Running Festival Frankston Running Festival Ballarat Marathon Runaway Noosa Marathon Hobart Marathon Festival HOKA Runaway Sydney Half Marathon
Ocean Swim Events 5

2027

Mooloolaba Mile Ocean Swim Cooly Classic Ocean Swim Terrigal Swim Fest Noosa Summer Swim Festival The Mader Port to Pub with Hotel Rottnest

Select an event to continue directly to its Cholangiocarcinoma Foundation Australia fundraising page.

What your funding builds

Cure. Extend. Prevent.

Every system we build has one purpose: pursue cure, extend survival and carry what we learn towards prevention.

01 Cure Keep every credible pathway to cure open.

For cholangiocarcinoma, surgery can provide a potentially curative pathway. We help patients reach experienced surgical expertise, seek further surgical opinions and understand treatment pathways that may preserve or create an opportunity for surgery.

Function Find and protect every credible opportunity for curative treatment.
Advantage Reduce the risk that a potentially curative option is lost through late understanding or insufficient expertise.

The work

Surgical Expertise Second & Third Surgical Opinions Curative Treatment Navigation Downstaging Pathways
02 Extend Find and protect opportunities to extend survival.

We give patients the systems to understand, question and act on their diagnosis earlier. We break complex reports, biomarkers, treatments and clinical language down to function and advantage, then help patients determine what deserves pursuit. We also work directly with pharmaceutical companies and other stakeholders to understand emerging medicines and support appropriate patient access where meaningful benefit is demonstrated.

Function Find, understand and improve access to opportunities capable of extending survival.
Advantage More time can preserve options, create access to new treatments and sometimes maintain or reopen a pathway to cure.

The work

Cholangio.org Patient Response Engine Patient Navigator Journal 7-Day Lived-Experience Navigation Patient-Endorsed Medical Professionals Genomics & Biomarkers Report Understanding & Audit Zero Cog & Cell City Medicines & Access Pharmaceutical Engagement Clinical Trials Australian Patient & Caregiver Forums Patient & Caregiver Catch Ups In-Hospital Symposiums Mentor Programs

Extending survival is not the alternative to cure. Sometimes extending survival preserves or creates the opportunity for cure.

03 Prevent Work backwards from cancer until its conditions of cause can be found.

Our Bile Bank and prevention research are designed to build the biological evidence needed to understand what changes in bile composition and flow before cancer forms. The objective is to identify poor or harmful bile earlier, then carry that learning forward into early detection, family risk and prevention.

Function Investigate the biological conditions that exist before cholangiocarcinoma forms.
Advantage Move intervention upstream from treating established cancer towards identifying risk earlier and ultimately preventing disease.

The work

Bile Bank Bile Biology Composition & Flow Early Detection Research Family Risk & Prevention

The prevention pathway

Bile Bank Understand Bile Detect Poor Bile Identify Risk Earlier Protect Families Prevent Cancer

Cure. Extend. Prevent.

The cure is in the cause.

What governs the work

THE PATIENT-LED DECLARATION

It is the patient who bears the consequence. Therefore it is the patient’s benefit that shall govern every decision.

No other interest shall outrank that benefit or obstruct its pursuit of cure or the extension of survival.

What is learned from every patient shall be carried forward until Cause is understood and Prevention becomes possible.

This is what governs the work you fund. Patient benefit comes first.

Cure. Extend. Prevent.

The cure is in the cause.

Steve Holmes