Just yesterday,
I was a person.
Today, I am a patient.
Just yesterday, I was a person.
Today, I am a patient.
Patient-led culture.
We’re not here to raise awareness. We’re here to raise survival.
We are you.
You fight to win, so do we, with you.
This foundation is not a traditional advocacy.
It is a patient- and caregiver-led force on the battlefield.
Executing what works – now, today.
That’s our unique expertise.
If it doesn’t help you win today, we don’t do it.
That’s the example we set. That’s our test. That’s how we win.
Hello
My name is Steve Holmes — I’m a late stage 4 survivor, and co-founder (with my wife Claire) of this foundation.
I will now help guide you to your strongest possible start.
You didn’t plan for this diagnosis. No one does.
But now that you’re here, you need more than just care. You need a response strategy— and a community with the right culture to support that response.
We’re here to help you do that — with clarity, strategy, and strength. Because treatment alone is not enough — it’s only half the story.
Never assume.
You have more within than you know.
This challenge will unlock and unleash it — but only if you get out of your own way… and let it rise up and lead.
Your greatest strength—
To be open-minded and Willing without condition.
Your greatest asset —
It’s the lived expertise of patients, caregivers, and clinicians who’ve been to the edge… and built their way back.
We are built on that.
Built on what works. Built in the expertise of lived experience. Embraced by a culture to respond — and win.
“Just yesterday, I was a person. Today, I am a patient.
I must become the best patient I can possibly be — so I can become that person again.
— Steve Holmes
Welcome To Your Response–
Choose Your Starting Point
Beth’s Cholangio Story
A Journey of Strength and Hope ... In this powerful and deeply personal video, Beth shares her journey of cholangiocarcinoma with honesty, courage, and grace. From diagnosis to treatment and everything in between, Beth opens up about the challenges she's faced and the resilience she's discovered along the way. Her story is a reminder that even in the darkest times, hope, community, and determination can shine through.
Losing Adrian was the hardest thing I’ve ever faced, but I wasn’t alone. From the moment we connected, the Cholangiocarcinoma Foundation Australia stood beside us. They helped us understand Adrian’s diagnosis in a way that made sense, gave us the tools to ask the right questions, and guided us gently through decisions no family ever wants to make. What they offer isn’t just information - it’s strength. It’s clarity. It’s kindness at a time when everything feels uncertain and overwhelming. They were always there when I needed to talk or just needed someone who understood. That support meant more than I can ever express. Thank you for helping us carry Adrian with dignity, love, and care, and for helping me feel held, even in the darkest moments. — Elaine
I will always be deeply grateful to you and your team, but especially to you, Steve. When I first reached out to you, both here and while you were overseas, you gave your time so generously. Your rapid response and guidance during such a desperate time truly touched me, and it’s something I will never forget. From the patient journal you sent to my sister to simply being there whenever the call was made; you reminded me just how kind and supportive people can be and often closer than we think. It took some encouragement for my sister to finally get in touch with you, but I’m so glad she did. She was grateful as well, especially after speaking with you and Ben, which you both helped her so much. The tireless work that you, Claire, and the foundation continue to do is nothing short of remarkable. I have no doubt your brother would be incredibly proud of the difference you’re making in people’s lives. God bless you and Claire. I will continue to donate annually not only in support of the amazing work you do, but also in memory of my sister, your brother, and everyone who has faced this terrible disease. — Michael
