Cholangiocarcinoma Australia
Latest News:
Brenda’s Testimonial
James Hastings Testimonial
Cholangiocarcinoma Foundation Australia Partners with Genomic Focus
The Basics difference between Gem/Cis with Durvalumab vs. Keytruda
PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in Australia
Steven West: Cholangio Survivor
Lynette Williams: Cholangiocarcinoma Survivor
Cholangiocarcinoma Australia
Latest:
Brenda’s Testimonial
James Hastings Testimonial
Cholangiocarcinoma Foundation Australia Partners with Genomic Focus
The Basics difference between Gem/Cis with Durvalumab vs. Keytruda
PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in Australia
Steven West: Cholangio Survivor
Lynette Williams: Cholangiocarcinoma Survivor
Cholangiocarcinoma USA2018-10-22T03:20:55+13:00

Thoughts are Things – Capture them before their time has passed – Feed them well and give them life.

USA 

Please Contribute

    If you have a new group or information that can be added to this (USA) page please add it into the comments section below or hit the “Contribute” Tab and we will add to this page

    Organisations, Networks and Groups

    GI Cancers Alliance – GICA

    National Cancer Institue

    Craine’s Cholangiocarcinoma Crew

    The Cholangiocarcinoma Foundation

    Cholangiocarcinoma Caregivers

    CHOLANGIOCARCINOMA SUPPORT GROUP

    Vietnam Vets and Cholangiocarcinoma or Bile Duct Cancer

    Vietnam Vets and Cholangiocarcinoma or Bile Duct Research and Information

    Cholangiocarcinoma Immunotherapy Patients Cholangiocarcinoma Warriors (Patients-Fighters & Survivors)

    Bile Duct Cancer – Support & Awareness

    Widows & Widowers of Cholangiocarcinoma (Bile Duct Cancer)<

    Friends Who Like The Cholangiocarcinoma Foundation

    PLEASE READ & CONTRIBUTE

    Via Matt Reidy Post 3rd February 2018
    https://www.facebook.com/groups/CCTargetedTherapy/

    “I’ve created a spreadsheet that we can all access and edit to track our unique genetic mutations and what treatments have/have not been successful for us.
    Hopefully this data will help us and those that follow.
    Please add a new line for each treatment you’ve tried.”

    Patient Information – Google Docs Spreed Sheet Link 

    Become Part Of The Solution

    Was this helpful?  Please help us help patients succeed

    World Cholangio Day

    20th February 2025 
    LIGHT AUSTRALIA GREEN

    Projects you are supporting

    Optimal Patient Response (OPR)

    From Passenger To Co-Pilot: An Initiative and a carefully choreographed process that enhances healthcare by transforming the standard-of-care into a more comprehensive ‘standard-of-response’ process. At its core are printed Patient Navigator Journals and supporting digital web-app suite, all designed to better equip and empower the patients capacity to effectively respond and survive their diagnosis. A clear, step-by-step process supported by CCF peer-trained Navigators, Coaches, Hospital Ambassadors, and a constructive peer-to-peer community, replacing chaos with calm, and overwhelm with direction.

    Light Australia Green

    Galvanising Collaboration: The Light Australia Green Initiative is a comprehensive annual campaign focused on raising awareness and driving engagement in bile health and cancer response. Through targeted events, such as hospital-hosted symposiums, landmark illuminations on World Cholangiocarcinoma Day, and an annual conference, the initiative unites key stakeholders to promote collaboration, education and progress in managing bile-related cancers.

    BILEflow: Bile Health

    BILEflow Stands on its own as a research-driven initiative focused on understanding bile composition and health. Aimed at identifying chronic precancerous conditions, thus providing preventive measures for at risk /family and patient monitoring.

    BILElink For Patients

    Support our CCA-specific BILElink For Patients:  A patient-led, AI-assisted central intelligence platform that matches patient diagnoses with patient-endorsed medical professionals, remote 2nd opinions, remote collaborations, and clinical trials by mutation type.

    Cholangiocarcinoma Foundation Australia is registered as a charity with the Australian Charities and Not-for-Profits Commission (ACNC). Cholangiocarcinoma Foundation Australia has Deductible Gift Recipient (DGR) status with the Australian Tax Office. Donations over $2 or more are tax-deductible. ABN: 93 665 038 102

    Need to Talk

    Need to Talk

    +61 415 153 522
    steve@cholangio.org
    +61 415 153 522
    steve@cholangio.org

    Shaping The Future

    The Empowered Patient is uniquely positioned and equipped to understand, engage, and succeed by utilizing a process that integrates scientific advancements, evidence-based medicine, and human resilience attributes into a comprehensive response strategy.

    Fully embracing the concept of an empowered patient will advance science, reshape the healthcare response, and close the unattended gap between early detection and late-stage diagnosis.

    Copyright 2017 | All Rights Reserved | Cholangiocarcinoma Foundation Australia

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