Cholangiocarcinoma USA - Cholangiocarcinoma Australia

Latest News:

Leading the Future of Cholangiocarcinoma Care—Because No One Else Will

Brenda’s Testimonial

James Hastings Testimonial

Cholangiocarcinoma Foundation Australia Partners with Genomic Focus

The Basics difference between Gem/Cis with Durvalumab vs. Keytruda

PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in Australia

Steven West: Cholangio Survivor

Latest:

Leading the Future of Cholangiocarcinoma Care—Because No One Else Will

Brenda’s Testimonial

James Hastings Testimonial

Cholangiocarcinoma Foundation Australia Partners with Genomic Focus

The Basics difference between Gem/Cis with Durvalumab vs. Keytruda

PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in Australia

Steven West: Cholangio Survivor

Cholangiocarcinoma USASteve2018-10-22T03:20:55+10:00

Thoughts are Things – Capture them before their time has passed – Feed them well and give them life.

USA

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Organisations -Groups

If you have a new group or information that can be added to this (USA) page please add it into the comments section below or hit the “Contribute” Tab and we will add to this page

Organisations, Networks and Groups

GI Cancers Alliance – GICA

National Cancer Institue

Craine’s Cholangiocarcinoma Crew

The Cholangiocarcinoma Foundation

Cholangiocarcinoma Caregivers

CHOLANGIOCARCINOMA SUPPORT GROUP

Vietnam Vets and Cholangiocarcinoma or Bile Duct Cancer

Vietnam Vets and Cholangiocarcinoma or Bile Duct Research and Information

Cholangiocarcinoma Immunotherapy Patients Cholangiocarcinoma Warriors (Patients-Fighters & Survivors)

Bile Duct Cancer – Support & Awareness

Widows & Widowers of Cholangiocarcinoma (Bile Duct Cancer)<

Friends Who Like The Cholangiocarcinoma Foundation

Patient Spreadsheets

PLEASE READ & CONTRIBUTE

Via Matt Reidy Post 3rd February 2018
https://www.facebook.com/groups/CCTargetedTherapy/

“I’ve created a spreadsheet that we can all access and edit to track our unique genetic mutations and what treatments have/have not been successful for us.
Hopefully this data will help us and those that follow.
Please add a new line for each treatment you’ve tried.”

Patient Information – Google Docs Spreed Sheet Link

The Luckiest Unlucky Guy – The Matt Reidy Story

By Steve|2024-11-10T17:48:42+10:00November 10th, 2024|Categories: All, Patient Story|Tags: Keytruda, USA|

Matt's story shines a light on overcoming cholangiocarcinoma, from diagnosis and treatment to becoming a beacon of hope in the cancer community.

Lisa Salem-Craine: Cholangio Survivor

By Steve|2024-10-11T16:08:02+10:00July 25th, 2023|Categories: All, Testimonials, Z-Legacy|Tags: Testimonials, USA|

I met Steve and Claire Holmes many years ago and connected with them because like Steve, I am a cholangiocarcinoma survivor.

Melinda Bachini

By Steve|2024-11-03T15:37:25+10:00August 15th, 2022|Categories: All, PATIENT, Z-Legacy|Tags: adoptive Cell Therapy, Intrahepatic, Keytruda, patient, Trial Patient, USA, Videos-Immuno, Videos-Patients|

Surviving Cholangiocarcinoma a bile duct cancer is a significant challenge within the cancer world. Melinda Bachini took it on with an amazing supporter community underpinned by willingness and persistence.

Michael Lax sought a second opinion

By Steve|2024-10-11T16:12:24+10:00October 15th, 2018|Categories: All, SURGERY, Videos, Z-Legacy|Tags: Intrahepatic, UCSF, USA, Videos-Patients|

Michael Lax sought a second opinion on Cholangiocarcinoma at UCSF [...]

Melinda Bachini’s Cholangiocarcinoma Patient Perspective

By Steve|2024-10-11T16:12:24+10:00October 15th, 2018|Categories: All, Immunotherapy, PATIENT, Videos, Z-Legacy|Tags: Adoptive Sell Therapy, Intrahepatic, Keytruda, TIL, USA, Videos-Immuno, Videos-Patients|

Melinda Bachini's Cholangiocarcinoma Patient Perspective on Adoptive Cell Therapy,

Cholangio Immuno Warrior strikes another blow on “Cholangio the Beast”

By Steve|2024-10-11T16:12:26+10:00September 27th, 2018|Categories: All, Immunotherapy, Z-Legacy|Tags: immunotherapy, patient, USA|

Hi everybody! I think its time for an update because I feel so many of you need some hope. More than ever. I have noticed there are fewer positive news in the last months.

Need Help Now?

Connect with Steve
+61 415 153 522
steve@cholangio.org

Connect with Claire
+61 431 180 783
claire@cholangio.org

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