CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient and their caregiver first.

Lynette Williams

Testimonial
Be Vigilant – Don’t Accept No ~ Lynette 

Cholangio Survivor

CCF Patient Advocate

Coffs Harbour, NSW.

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Supporting CCF Australia initiatives is to support patient survival

I was diagnosed with Intrahepatic Cholangiocarcinoma in late 2021 and had a recurrence in mid 2022. I am so grateful to cholangiocarcinomaaustralia.org, in particular Steve Holmes. I knew nothing about the horrible disease and have gained much knowledge from Steve.

In order to successfully fight this disease we need to be armed with as much information as possible. Steve provides the perfect tools for this. Because of the knowledge I gained from Steve, I was able to act quickly when I had a recurrence. I had to seek other opinions when I was dismissed by some doctors. Without this information, we may not have had a second surgery in time. I am so appreciative of Steve Holmes and cholangiocarcinomaaustralia.org for helping to save my life. I am still cancer free, 2 years on.

Please support the Cholangiocarcinoma Foundation Australia’s Patient Initiatives – I do :)

Projects you are supporting

Optimal Patient Response (OPR)

From Passenger To Co-Pilot: An Initiative and a carefully choreographed process that enhances healthcare by transforming the standard-of-care into a more comprehensive ‘standard-of-response’ process. At its core are printed Patient Navigator Journals and supporting digital web-app suite, all designed to better equip and empower the patients capacity to effectively respond and survive their diagnosis. A clear, step-by-step process supported by CCF peer-trained Navigators, Coaches, Hospital Coordinators, and a constructive peer-to-peer community, replacing chaos with calm, and overwhelm with direction.

Light Australia Green

Galvanising Collaboration: The Light Australia Green Initiative is a comprehensive annual campaign focused on raising awareness and driving engagement in bile health and cancer response. Through targeted events, such as hospital-hosted symposiums, landmark illuminations on World Cholangiocarcinoma Day, and an annual conference, the initiative unites key stakeholders to promote collaboration, education and progress in managing bile-related cancers.

BILEflow: Bile Health

BILEflow Stands on its own as a research-driven initiative focused on understanding bile composition and health. Aimed at identifying chronic precancerous conditions, thus providing preventive measures for at risk /family and patient monitoring.

BILElink For Patients

Support our CCA-specific BILElink For Patients:  A patient-led, AI-assisted central intelligence platform that matches patient diagnoses with patient-endorsed medical professionals, remote 2nd opinions, remote collaborations, and clinical trials by mutation type.