CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient and their caregiver first.

Lisa Salem Craine

Testimonial

Lisa Salem-Craine
Survivor & Advocate
Founder: Craine’s Cholangiocarcinoma Crew

“Hope is Everything💚”

+1 330-903-6868

crainescancercure.org

Lisa’s Story

Supporting CCF Australia initiatives is to support patient Survival

I met Steve and Claire Holmes many years ago at a Cholangiocarcinoma Foundation meeting in Utah, and connected with them because like Steve, I am a cholangiocarcinoma survivor. I was diagnosed with Stage IV ICC in 2010 and given 6 months to live.

I truly believe without seeking out a second opinion, I would have given up hope and not be here today. Hope is a powerful tool for a rare cancer patient, but so are resources and navigation tools.

I mentor and advocate for CCA patients and even though the statement is overused, it stands true – ‘You have to be your own best advocate!” The Cholangiocarcinoma Foundation in the USA is a vital resource for CCA patients, offering support, navigation tools, and supporting critical research.

The CCF is a shining beacon for cholangiocarcinoma patients. I’m overwhelmed with joy that Steve and Claire have developed, researched, and collaborated to bring these crucial resources and navigation tools to patients in Australia, expanding the reach to help more patients and caregivers.

These resources help patients have a strong voice and the ability to advocate for themselves. Cholangiocarcinoma is a rare cancer making these tools even more crucial in improving survival rates in our cancer community.

Thank you Steve and Claire for improving the lives of CCA patients and positively impacting survival rates by providing credible resources.

I encourage you to support Cholangiocarcinoma Foundation Australia’s Patient Initiatives – I do :)

Support Now

Projects you are supporting

CCA Digital Toolkits

Support the evolution of our all-screen digital toolkits tailored for CCA patients: Toolkits provide the optimal cancer patient pathway and your contributions will fuel the continuous development and maintenance of these invaluable resources. Invest in this transformative initiative and join us in empowering patients on their journey against cholangiocarcinoma.

Patient CCA Journals

Support our patient empowerment initiative. Your contribution will enable the production and free distribution of our invaluable toolkit and navigator journals – the optimal cancer patient pathway.

Remote 2nd Opinions

Support our ‘2nd Opinion Project’ – a critical patient-first initiative. Your contribution will enable remote access to diagnosis-specific medical experts for cholangiocarcinoma patients across Australia, promoting second or third opinions. Donate today to help solve a significant challenge and potentially save lives. Join us in putting patients first.

Patient Registry & Genomic Portal

Support our CCA-specific Patient Registry and Portal. Your donation helps patients contribute their diagnosis and genetic data, enhancing our understanding and paving the way for more accurate response initiatives. Fund this critical patient initiative today and join us in revolutionising cholangiocarcinoma care.