CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient and their caregiver first.

Lisa Salem Craine

Testimonial

Lisa Salem-Craine
Survivor & Advocate

Founder: Craine’s Cholangiocarcinoma Crew

“Hope is Everything💚”

+1 330-903-6868

crainescancercure.org

Lisa’s Story

Supporting CCF Australia initiatives is to support patient Survival

I met Steve and Claire Holmes many years ago at a Cholangiocarcinoma Foundation meeting in Utah, and connected with them because like Steve, I am a cholangiocarcinoma survivor. I was diagnosed with Stage IV ICC in 2010 and given 6 months to live.

I truly believe without seeking out a second opinion, I would have given up hope and not be here today. Hope is a powerful tool for a rare cancer patient, but so are resources and navigation tools.

I mentor and advocate for CCA patients and even though the statement is overused, it stands true – ‘You have to be your own best advocate!” The Cholangiocarcinoma Foundation in the USA is a vital resource for CCA patients, offering support, navigation tools, and supporting critical research.

The CCF is a shining beacon for cholangiocarcinoma patients. I’m overwhelmed with joy that Steve and Claire have developed, researched, and collaborated to bring these crucial resources and navigation tools to patients in Australia, expanding the reach to help more patients and caregivers.

These resources help patients have a strong voice and the ability to advocate for themselves. Cholangiocarcinoma is a rare cancer making these tools even more crucial in improving survival rates in our cancer community.

Thank you Steve and Claire for improving the lives of CCA patients and positively impacting survival rates by providing credible resources.

I encourage you to support Cholangiocarcinoma Foundation Australia’s Patient Initiatives – I do :)

Projects you are supporting

Optimal Patient Response (OPR)

From Passenger To Co-Pilot: An Initiative and a carefully choreographed process that enhances healthcare by transforming the standard-of-care into a more comprehensive ‘standard-of-response’ process. At its core are printed Patient Navigator Journals and supporting digital web-app suite, all designed to better equip and empower the patients capacity to effectively respond and survive their diagnosis. A clear, step-by-step process supported by CCF peer-trained Navigators, Coaches, Hospital Coordinators, and a constructive peer-to-peer community, replacing chaos with calm, and overwhelm with direction.

Light Australia Green

Galvanising Collaboration: The Light Australia Green Initiative is a comprehensive annual campaign focused on raising awareness and driving engagement in bile health and cancer response. Through targeted events, such as hospital-hosted symposiums, landmark illuminations on World Cholangiocarcinoma Day, and an annual conference, the initiative unites key stakeholders to promote collaboration, education and progress in managing bile-related cancers.

BILEflow: Bile Health

BILEflow Stands on its own as a research-driven initiative focused on understanding bile composition and health. Aimed at identifying chronic precancerous conditions, thus providing preventive measures for at risk /family and patient monitoring.

BILElink For Patients

Support our CCA-specific BILElink For Patients:  A patient-led, AI-assisted central intelligence platform that matches patient diagnoses with patient-endorsed medical professionals, remote 2nd opinions, remote collaborations, and clinical trials by mutation type.