CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient and their caregiver first.

Karen O’Hagan-Humphries

Testimonial
Fill yourself with hope and possibilities ~ Karen 

Cholangio Survivor

CCF Team Member

Sydney Harbour, NSW.

‭0404 431 726‬

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Supporting CCF Australia initiatives is to support patient survival

Steve Holmes and the Cholangiocarcinoma Foundation Australia embody HOPE. As a Stage 3B Cholangiocarcinoma (CCA) survivor of 22 months, I discovered my condition after having my Gallbladder removed. Without my GP’s assistance in seeking a second opinion from a knowledgeable Cholangiocarcinoma Professor, I was told I had only six months to live. That second opinion saved my life.

Undergoing radical surgery that included the removal of several organs, I later learned that the cancer had spread. Six months of chemotherapy followed, leading to numerous hospitalisations.

The key to my recovery and ongoing remission lies in Steve’s and CCF Australia’s resources and tools, which have filled me with more HOPE than ever before. Through these tools, Steve encourages us to look beyond the current medical model and become Empowered patients—the core of the CCF’s philosophy.

I wholeheartedly support CCF Australia’s initiatives, I value their Patient-centric model, which is driven by patients for patients. The tools they provide save lives and make their model truly unique.

Steve and the CCF Australia empower patients, particularly in making informed choices about the doctors on their team, which can make all the difference between a bleak prognosis and a hopeful future.

Supporting CCF Australia is essential to ensure that patients and caregivers receive the necessary assistance, leading to increased survival rates for this underprivileged and overlooked cancer.

Please support the Cholangiocarcinoma Foundation Australia’s Patient Initiatives – I do 🙂

Karen

Projects you are supporting

CCA Digital Toolkits

Support the evolution of our all-screen digital toolkits tailored for CCA patients: Toolkits provide the optimal cancer patient pathway and your contributions will fuel the continuous development and maintenance of these invaluable resources. Invest in this transformative initiative and join us in empowering patients on their journey against cholangiocarcinoma.

Patient CCA Journals

Support our patient empowerment initiative. Your contribution will enable the production and free distribution of our invaluable toolkit and navigator journals – the optimal cancer patient pathway.

Remote 2nd Opinions

Support our ‘2nd Opinion Project’ – a critical patient-first initiative. Your contribution will enable remote access to diagnosis-specific medical experts for cholangiocarcinoma patients across Australia, promoting second or third opinions. Donate today to help solve a significant challenge and potentially save lives. Join us in putting patients first.

Patient Registry & Genomic Portal

Support our CCA-specific Patient Registry and Portal. Your donation helps patients contribute their diagnosis and genetic data, enhancing our understanding and paving the way for more accurate response initiatives. Fund this critical patient initiative today and join us in revolutionising cholangiocarcinoma care.