Empower Our Patients – Increase Their Survival.
Empower Our Community – Exponentially Increase Survival

There is nothing in life or the science of life that is not vulnerable to being knocked off its precarious pedestal of certainty. The only certainty in life is that there is no certainty, just obstacles and their possibilities. Therefore, our opportunity is to see the obstacle as it truly is, not as we fear or hope it to be. It is in this clarity that the obstacle transforms into a challenge, allowing us to turn possibilities into our new reality.

It is we patients who walk the talk, it is we patients who lead and shape the science and healthcare that serves us.  Every step we make is an action that speaks for us. Sharing our story amplifies action over words of action, it is the greatest gift we have to give.” ~ Steve Holmes 

When Lynette Williams received her diagnosis of intrahepatic cholangiocarcinoma in late 2020, her life was forever changed. Like many who hear the words ‘bile duct cancer’ for the first time, she found herself facing a rare and aggressive disease that few people, even in the medical community, knew much about. But Lynette’s story is not one of despair—it’s one of resilience, hope, and the power of knowledge.

Lynette’s journey began with what she thought was mild indigestion. Fortunately, her diligent GP ordered an ultrasound that revealed a tumor. This proactive step, along with an early diagnosis, became a defining moment in her survival. Lynette underwent what she believes to be the first-ever liver resection at Coffs Base Hospital, a feat accomplished by a skilled Upper GI specialist.

Her recovery, however, wasn’t without its challenges. Even after completing six months of chemotherapy, a recurrence of the cancer appeared in her final week of treatment. But armed with knowledge and determination, Lynette didn’t give up. A second liver resection in Sydney by a visiting specialist, followed by further chemotherapy, allowed her to continue the fight. Today, Lynette is celebrating over 30 months cancer-free, a testament to her strength and the outstanding medical care she received.

But Lynette’s success isn’t just a result of timely medical intervention—it’s also the result of knowledge. “I owe so much to Cholangiocarcinoma Foundation Australia and Steve Holmes,” she says. “I knew nothing about this disease at first, but the information and support I received from the ‘Foundation’ changed everything. When I had my recurrence, I knew exactly what steps to take because of the tools and knowledge Steve provided.”

For Lynette, advocating for her own health was key to beating this disease. When faced with doctors who dismissed her concerns, she sought second opinions, pushing forward with confidence. “Without the information I gained from the ‘Foundation’ we might not have had that second surgery in time,” she recalls. “Now, two years later, I’m still cancer-free, and I couldn’t be more grateful.”

3 Year Anniversary

18th August 2024 is another significant milestone for Lynette marking her 3rd anniversary since her second resection. When it comes to this cancer every milestone is something to be acknowledged.

Lynette’s story is a beacon of hope for those who may feel overwhelmed or unsure about their diagnosis. Her message is simple: with the right knowledge, support, and proactive approach, it’s possible to beat cholangiocarcinoma.

Cholangiocarcinoma is bile duct cancer.

The liver produces bile and transports it to our small intestines where it helps breakdown the food we eat. Healthy bile is central and critical to our overall health. However unhealthy bile is a silent killer hidden in plain sight.

An Opportunity to Be Part of Something Special:

Uniting Patients, their families, and Communities, Spreading Awareness, sharing knowledge but most of all friendship.

As part of the Light Australia Green campaign, iconic landmarks like Coffs Harbour’s Big Banana will once again light up green for World Cholangiocarcinoma Day in 2025. This day presents a huge opportunity—not just to raise awareness, but to gather and personally meet each other, share stories, and enjoy healthy food that nourishes the bile of life. Under the glow of these green landmarks, patients, survivors, and supporters will come together as a united community.

Participants are encouraged to bring green chairs, picnic tables, and green foods to share, gathering in strength and solidarity. These meetings are more than symbolic—they are a powerful testament to the resilience of the cholangiocarcinoma community and an opportunity to connect, reflect, and support one another.

“We want to ensure that everyone knows about this disease and the advances we’re making in patient education and advocacy to enhance treatment options,” says Steve Holmes, CEO of Cholangiocarcinoma Australia (Cholangio). “Lighting Australia green is a powerful way to honor those we’ve lost, celebrate the survivors, and push for greater awareness. By coming together we are taking the initiative individually and together, this is how we are building a stronger, more empowered, and effective community.”

Host Your Own Light Australia Green Party or Event

If you’d like to ensure your community is involved, please email ben@cholangio.org . Just imagine—everyone across Australia hosting their own Light Australia Green party, event, or gathering simultaneously on the same day, at the same time united in solidarity and action for World Cholangiocarcinoma Day.

Ben Kikuchi
Director of Patient Integration & Advocacy

• ben@cholangio.org 

This article is a variation of an original piece published by News of the Area, highlighting Lynette Williams’ journey. It has been adapted and expanded with additional insights for the Cholangiocarcinoma Foundation Australia to inspire and empower patients and caregivers.